The San Diego Regional Center wasted no time in putting me in touch with the Center for Autism, Research, Evaluation and Service or CARES. Our program Supervisor became a frequent addition to our household. She or her two assistants were at our house everyday for a combined total of fifty-four hours each month for behavioral and educational intervention in the home environment. We focused on Discrete Trial Training, Pivotal Response Training, and Applied Behavior Analysis.
The first observation reads: Jacob's intake took place in his home. During this intake interview Jacob ran around the room waving a stick and making repetitive vocalizations while a video tape (THE WIGGLES) was on in the background. He approached his mother a few times in attempts to get her attention. Jacob's mother reported that Jacob is very affectionate and has only minor behavior problems. Mom reports that Jacob understood a few simple phrases, ("let's go" and "bye bye") and could say a few words (numbers, bye and all done). Jacob is thirty months old.
I remember this day clearly, I was still in shock from the diagnosis, I wanted time to stop so I could process and deal with my potential reality. I remember asking what his prognosis was and being devastated by the answer. Their answer, we can't tell you that, each child progresses differently, some never speak, never hold a job, never have relationships, people can come and go with no response from the child. We prayed every night that our child would speak. If he could just talk, I would be content. I cried a lot, the unknown creates such a defeating feelings with unrest within ones soul.
Friday, January 2, 2009
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